RN Senior Clinical Program Specialist for Genetics Specialty Programs

Primary Location

Burnet Campus Department

Human Genetics Shift

Day (United States of America) Schedule

Full time Weekly Hours

40 FTE

1 Employee Status

Regular

*Expected Starting Pay Range

$83,969.60 - $107,224.00 *Starting pay is based on experience, skills, and equity; exceptions may apply for highly qualified candidates. Additional pay (e.g., shift, on‑call, or weekend differentials) and benefits may apply. Annual pay may vary based on FTE status.

RN Senior Clinical Program Specialist for Genetics Specialty Programs

Full-Time | 40 Hours per Week, 5 x 8 hour or 4 X 10-hour shifts

Make a Difference Beyond the Bedside

Cincinnati Children’s is seeking an experienced, motivated Registered Nurse to join our team as a Senior Clinical Program Specialist. This is an exciting opportunity for a nurse who is ready to take on a new challenge and expand their impact beyond direct patient care by supporting the development, coordination, and advancement of specialized clinical programs serving children and families with rare metabolic conditions and Neurofibromatosis (NF).

The ideal candidate brings a strong clinical nursing background, excellent organizational and communication skills, and a passion for patient and family education, program coordination, and continuous improvement. This individual will work collaboratively with multidisciplinary clinical teams, patients, families, and national organizations to enhance education, care coordination, and outcomes for these specialized patient populations.

Previous experience developing or coordinating clinical programs is beneficial but not required. We are looking for a proactive, resourceful nurse who enjoys taking initiative, building relationships, solving problems, and bringing new ideas to life.

Key Responsibilities

Program Development & Coordination

• •Coordinate and support the development and implementation of clinical programs and initiatives serving patients with rare metabolic conditions and Neurofibromatosis.
• •Lead the planning and execution of annual Metabolic Family Education Day and the Neurofibromatosis Family Conference.
• •Coordinate educational workshops, webinars, support groups, professional training events, and initiatives supporting the transition from pediatric to adult care.
• •Collaborate with multidisciplinary clinical teams to identify program needs, establish priorities, and implement initiatives that enhance patient and family experiences.
• •Support the development and implementation of standardized care pathways to promote consistency and reduce variation in clinical practice.

Patient, Family & Professional Education

• •Develop, coordinate, and maintain patient and family educational resources that reflect current evidence-based practices, treatment guidelines, and emerging therapies.
• •Support continuing education opportunities and professional training for healthcare providers.
• •Partner with national advocacy organizations, specialty networks, and healthcare institutions to expand educational outreach and share resources.
• •Identify opportunities to improve access to education and support for patients and families navigating complex and rare diagnoses.

Quality, Outcomes & Program Evaluation

• •Collect, monitor, analyze, and report clinical quality metrics related to patient outcomes, access to care, treatment adherence, and patient satisfaction.
• •Track outcomes associated with newborn screening follow-up, enzyme replacement therapies, gene-targeted treatments, and Neurofibromatosis surveillance protocols.
• •Evaluate program effectiveness and identify opportunities to improve care coordination, patient experience, and health equity.
• •Facilitate participation in national registries, benchmarking initiatives, rare disease networks, and quality collaboratives.
• •Manage participation in national Neurofibromatosis registries and metabolic consortium initiatives.

Qualifications

Required:

• •Bachelor's degree in Nursing (BSN).
• •Five or more years of related professional experience.
• •Current Registered Nurse (RN) licensure.

Preferred:

• •Master's degree in Nursing or a related healthcare field.
• •Experience in pediatric nursing, specialty care, rare diseases, metabolic conditions, or Neurofibromatosis.
• •Experience supporting clinical program development, coordination, education, or quality improvement initiatives.
• •Strong project coordination, organizational, communication, and relationship-building skills.
• •Ability to work independently, take initiative, manage multiple priorities, and collaborate effectively across multidisciplinary teams.
• •Proficiency in developing educational materials, coordinating events, and monitoring program outcomes.

Why Cincinnati Children’s?

At Cincinnati Children’s, you have the opportunity to make a meaningful difference in the lives of children and families while working alongside nationally recognized experts in pediatric healthcare. This position offers an opportunity to use your clinical nursing expertise in a new and rewarding way—helping shape programs, advance education, strengthen partnerships, and improve care for children with complex and rare conditions.

If you are an experienced nurse who enjoys taking on new challenges, building programs, and making an impact beyond the bedside, we invite you to explore this opportunity!

JOB RESPONSIBILITIES

• •Program Coordination and Education Management - Serves as program coordinator for assigned program. Supports leadership in implementation, coordination, evaluation and planning of program's short/long term goals. Serves as primary program liaison for daily administration and operational issues such as data management, marketing/communications, outreach, annual conference coordination, education and social media coordination. Maintains direct communication with key staff for interaction and information exchange among program components, project leaders, and professional and lay communities. Participates fully in strategic planning process and identifies areas of need and focuses on translating portions of annual plan in to well defined projects and programs w/timelines and deliverables. Plans and executes projects in a timely manner. Provides support for internal/external education offerings and competency requirements and resources. Develops educational training using current evidence and research; serves as resource to multidisciplinary staff. Provides education/collaboration on improvement work internally/externally. Provides input in funding decisions for clinical education and staff professional development.
• •Marketing/Outreach/Communication - Places orders for materials and monitors budget for funded projects. Facilitates grant applications and provides support for timely submissions in conjunction with research. Provides manuscript and reference support, including use of electronic resources (PubMed, EndNote etc.). May acts as a liaison between clinical staff, business personnel and billing/coding personnel regarding appropriate documentation/procedural modifications. Organizes and administers other program responsibilities, such as the maintenance of patient records, electronic systems, and files. May assist with program budget, account payables/account receivables. Coordinates marketing of the specialty program/center. Serves as point person for Marketing and Communications team for website content updates and help guide content development for brochures, social media properties and other marketing materials. Works with Marketing Depart. to further improve internet website visibility, including optimization of search engine results (Google, Yahoo) and other social media venues (e.g., Facebook, Twitter). Performs assessments of website for accuracy of data and information and performs content updates on a monthly basis. Supports and contributes to community/outreach planning and reporting process.
• •Process/Quality Improvement and Outcomes - Identify, develop, and